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| She was born with her heart beating outside her chest. |
This six-year-old
girl was born with her heart and other organs outside her chest cavity and has
moved thousands of miles from Russia to America in the hope she can have
treatment. She was born with her heart beating outside her chest.
Virsaviya "Bathsheba" Borun-Goncharova
suffers from thoraco-abdominal syndrome or Pantalogy of Cantrell and amazingly
she is able to dance and even do the splits despite her condition.
According to photos posted online by her mother,
her heart can be visibly seen beating with only a thin layer of skin to protect
it.
The condition which occurs in less than 1 in a
million births is so rare her mother Dari Borun has had to move her from Russia
to the US in the hope she can have surgery.
Several hospitals around the world are said to
have turned Ms Borun's request to operate on her daughter because of the
difficulties and risks of surgery.
The pair recently traveled to Boston but the
Children's Hospital could not operate because her aortic blood pressure was too
high, she claims.
Now the family have moved to Hollywood in the
hope that medications can bring her blood pressure down enough to operate.
"I like to draw Jesus, ponies and
angels," said Virsaviya.
"I
don't go to the school and I don't go to the ballet but I want to do it at
home.
"My
heart is right here.
"It's
outside of my chest and I really love my mom. She's always touching my heart
because she likes it."
Virsaviya's
heart, about the size of a fist, has always been outside of her chest since
birth.
She
is expected to require several very complicated operations.
The
cheerful and talented child who loves dolphins, dogs, horses and Beyonce has
had her entire life documented on her mother's instagram account. It shows
hundreds of photos of the child.
Miracles do happen. My prayer for Virsaviya
"Bathsheba" Borun-Goncharova is to have a successful operation
and quick recovery in Jesus name, Amen!
Culled from Mirror
